by Silvia Prades | Nov 13, 2023 | News Articles
Junko Shiozawa, our Advisory Board Member, has been on a remarkable journey of advocacy and awareness since her daughter was diagnosed with DRPLA 15 years ago. Her daughter currently faces significant health challenges, being bedridden with a gastric tube and a...
by Silvia Prades | Nov 2, 2023 | News Articles
CureDRPLA hosted an in-person research conference in Boston on October 10-11, with 26 attendees. Including researchers from academic institutions in the US, UK, Italy and Japan attended the conference, along with representatives from Vico Therapeutics B.V, Alnylam...
by Silvia Prades | Nov 1, 2023 | Announcements
Event tailored for individuals with DRPLA, their families and anyone interested in DRPLA. Make sure to register in advance (it’s free!). Our Research Manager, Dr Silvia Prades, will be providing a comprehensive update on the projects funded by CureDRPLA. Followed by a...
by Silvia Prades | Oct 5, 2023 | Announcements
We hosted the first-ever CureDRPLA Research Conference in May 2022, with participation from scientists, neurologists, and representatives from pharmaceutical and biotech companies. It was such a huge success that we decided to make it a yearly event and the time has...
by Silvia Prades | Sep 21, 2023 | News Articles
CureDRPLA is currently funding a Natural History and Biomarkers Study, aimed at gaining a deeper understanding of the progression of DRPLA over time, as well as identifying any genetic factors and markers that might predict disease progression. This study will provide...
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